Bwahahaha.... 4 years later....

I don't know that I have let go of my occasionally bitter and despairing mindset, but I have made salve, grown my own vegetables, made some freaking fantastic night time facial oil and let my hair grow out. Guess what. I am glad I did.

Despite my previous mindset, we have three times had my son injected with ten huge needles of botox to help hime stretch his muscles, started acupunture and chiropractic care as well as out usual summer of conductive education and home stretching and yoga. Yes, I am glad I did, but it was a hard decision.

For years we have resisted a feeding tube. I make my own organic, gluten, soy  and daiy free high protein shakes, but it is still not enough. We may and most likely will get a feeding tube this fall. I hope I will be glad I did.